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The
Sickle Cell Society was first set up as a registered
charity in 1979. It was formed by a group of patients, parents
and health professionals who were all concerned about the lack
of understanding and the inadequacy of treatment for sufferers
of sickle cell disorders.
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Merton
Sickle Cell and Thalassaemia Group (MSCTG) was established
in 1991 and "it is the only group of its kind in the
London Borough of Merton which offers information and support
to people suffering from Sickle Cell Anaemia and Thalassaemia
Disorders". WSCTSG works closely with the Group.
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Croydon Sickle Cell and Thalassaemia Centre (CSCATS)
Group's main aim "is to help improve the quality of
life for affected individuals, their families and carers. We
also promote awareness of sickle cell and thalassaemia in the
community". |
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St
George's University Hospital is located close to WSCTSG.
Most people living in the Borough attend St Georges for paliative
and in-patient care. Consultants of people with Sickle Cell
and Thalassaemia run regular clinics to review care and support
services. |
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Full
Circle charity is established by Suzanne Ruggles, to
"enhance the Quality of Life of adults and children living
with, through and beyond leukaemia, cancer, bone marrow failure,
sickle cell disease and bone marrow transplant".
The charity has worked with Merton Sickle Cell and Thalassaemia
Group (MSCTG) and WSCTSG to run a pilot course to teach reflexology
and relaxation techniques to people with Sickle Cell Anaemia
/ Thalassaemia and their carers. |
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Viridian (Servite) Housing
www.viridianhousing.org.uk/
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Viridian
Housing is a Housing Association set up to help people with
their housing needs. Viridian Housing are helping our members
and others with Sickle Cell Anaemia and Thalassaemia into supported
accommodation in one of their 3 sites specifically set up for
this purpose. |
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Direct.gov
www.direct.gov.uk
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Direct.gov
has lots of information with regards to benefits, education
and employment. The information is up-to-date and easy to find.
Please have a look at their site. |
